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1.
Disabil Rehabil ; 46(5): 856-869, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-36843295

RESUMEN

PURPOSE: To systematically review and evaluate existing psychometric evidence for the Family Empowerment Scale (FES), which has been widely used to measure empowerment across the world. METHODS: Three databases were searched up until December 2021. Eligible studies were identified by an interdisciplinary team using the PRISMA procedure. The methodological quality of psychometrics (Risk of Bias standards) and sufficiency of each psychometric property (e.g., reliability, content validity, construct validity, responsiveness) were independently evaluated by three members, following COnsesus-based Standards for the selection of health Measurement INstruments (COSMIN). RESULTS: Twelve studies involving 3278 caregivers were included in the review. Studies reported limited information about content validity and study sample characteristics. There is sufficient evidence with moderate methodological quality to support structural validity for a four and three-bifactor structure. Sufficient evidence with good methodological quality was found for internal consistency. No studies examined responsiveness. CONCLUSIONS: Future psychometric studies of the FES should include diverse families and establish content validity following current COSMIN standards. Structural validity evidence does not support the original three-factor structure, which suggests the need to refine the theoretical measurement constructs. Responsiveness is needed prior to using FES as an instrument of change in applied research studies.Implications for RehabilitationThe evidence for the use of the Family Empowerment Scale (FES) is primarily with families of children with disabilities who identify as white, non-Hispanic, and live in the US.Across studies, evidence suggests the FES items work well together to measure family empowerment.Caution should be used when using the FES to measure changes in empowerment over time.


Asunto(s)
Empoderamiento , Psicometría , Humanos , Cuidadores , Reproducibilidad de los Resultados , Familia
2.
Disabil Health J ; 16(3): 101463, 2023 07.
Artículo en Inglés | MEDLINE | ID: mdl-37024396

RESUMEN

BACKGROUND: Telehealth is increasingly used to deliver mental health services. However, the potential benefits of telehealth for people with intellectual and developmental disabilities and mental health needs (IDD-MH) may not be fully realized. This study addresses gaps in knowledge about access to information and communication technologies (ICTs) for individuals with IDD-MH from the perspective of their family caregivers. OBJECTIVE: What factors are associated with access to ICTs among family caregivers of people with IDD-MH who use START services? METHODS: Retrospective analysis of cross-sectional interview data gathered for START use at the onset of COVID-19. START is a crisis prevention and intervention evidence-based model for people with IDD-MH implemented across the USA. To assess needs during COVID-19, START coordinators conducted interviews with 1455 family caregivers between March and July 2020. A multinomial regression model examined correlates of ICT access, as indicated by an index (poor, limited, and optimal access). Correlates included the level of IDD, age, gender, race, ethnicity, rural setting of the person with IDD-MH, and caregiver status. RESULTS: Age (ages 23-30 years) and sole caregiver status were significantly associated with limited access (both p ≤ .001). Age (ages 23-30 years and ≥31 years, p < .001), race (Black or African American, p = .001), ethnicity (Hispanic, p = .004), and sole caregiver status (p < .001) were significantly associated with poor access. CONCLUSIONS: Disparities existed in ICT access for adults, specific racial/ethnic groups, and sole caregiver households. Healthcare policy related to telehealth must consider how ICT access can be equitable for all users with IDD-MH.


Asunto(s)
COVID-19 , Personas con Discapacidad , Discapacidad Intelectual , Telemedicina , Adulto , Niño , Humanos , Adulto Joven , Cuidadores/psicología , Salud Mental , Acceso a la Información , Discapacidades del Desarrollo/psicología , Estudios Retrospectivos , Estudios Transversales , Discapacidad Intelectual/psicología , Comunicación , Tecnología
3.
PLoS One ; 17(2): e0262986, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-35143513

RESUMEN

BACKGROUND: The ARMADILLO Study determined whether adolescents able to access SRH information on-demand via SMS were better able to reject contraception-related myths and misconceptions as compared with adolescents receiving pushed SMS or no intervention. TRIAL DESIGN: This trial was an unblinded, three-arm, parallel-group, individual RCT with a 1:1:1 allocation. Trial registration: ISRCTN85156148. METHODS: This study was conducted in Lima, Peru among participants ages 13-17 years. Eligible participants were randomized into one of three arms: Arm 1: access to ARMADILLO's SMS information on-demand; Arm 2 access to ARMADILLO SMS information pushed to their phone; Arm 3 control (no SMS). The intervention period lasted seven weeks. At baseline, endline, and follow-up (eight weeks following endline), participants were assessed on a variety of contraception-related myths and misconceptions. An index of myths-believed was generated. The primary outcome assessed the subject-specific change in the mean score between baseline and endline. Knowledge retention from endline to follow-up was also assessed, as was a 'content exposure' outcome, which assessed change in participants' knowledge based on relevant SMS received. RESULTS: In total, 712 participants were randomized to the three arms: 659 completed an endline assessment and were included in the primary analysis. Arm 2 participants believed fewer myths at endline compared with control arm participants (estimated subject-specific mean difference of -3.69% [-6.17%, -1.21%], p = 0.004). There was no significant difference between participants in Arm 1 vs. the control Arm, or between participants in Arm 1 vs. Arm 2. A further decrease in myths believed between endline and follow-up (knowledge retention) was observed in all arms; however, there was no difference between arms. The content exposure analysis saw significant reductions in myths believed for Arm 1 (estimated subject-specific mean difference of -9.47% [-14.83%, -4.11%], p = .001) and Arm 2 (-5.93% [-8.57%, -3.29%], p < .001) as compared with the control arm; however Arm 1's reduced sample size (n = 28) is a severe limitation. DISCUSSION: The ARMADILLO SMS content has a significant (but small) effect on participants' contraception-related knowledge. Standalone, adolescent SRH digital health interventions may affect only modest change. Instead, digital is probably best used a complementary channel to expand the reach of existing validated SRH information and service programs.


Asunto(s)
Salud Reproductiva , Salud Sexual , Envío de Mensajes de Texto , Humanos , Adolescente , Perú , Conocimientos, Actitudes y Práctica en Salud , Salud del Adolescente , Teléfono Celular
4.
Reprod Health ; 17(1): 116, 2020 Jul 31.
Artículo en Inglés | MEDLINE | ID: mdl-32736561

RESUMEN

BACKGROUND: Improved access to sexual and reproductive health (SRH) services and information is essential for supporting adolescents and youth in making informed decisions and optimizing each young person's outcomes related to their SRH, health and well-being and countries' current and future social and economic development. Mobile phones offer opportunities for young people to privately access SRH content and to be linked to SRH services. The objective of this study was to develop the content for an SMS (short message service or "text message") platform jointly with adolescents and youth in three regions in Peru (Lima, Ayacucho and Loreto) as part of the ARMADILLO (Adolescent/Youth Reproductive Mobile Access and Delivery Initiative for Love and Life Outcomes) Study. METHODS: Content development was done in three stages. During Stage 1, we held community consultations with 13-17 year old adolescents, 18-24 year old youth and professionals who work with young people through the education and health sectors ("adult advisers") to identify and rate SRH topics of interest through group free- and guided-brainstorming activities and an individual written sharing activity. During Stage 2, the team developed the preliminary domains, sub-domains and content for the SMS platform. During Stage 3, we held focus groups with adolescents to validate the SMS content, including both individual scoring of and group feedback for each SMS. Group feedback asked about their general impressions and understanding and their thoughts about the language and usefulness of the SMS. RESULTS: A total of 172 adolescents and youth ages 13-24 and 20 adult advisers participated. Adolescents and youth brainstormed and rated SRH topics and sub-topics that led to the initial structure for the SMS platform, with 9 domains, 25 sub-domains and 146 draft SMS. Adolescents provided high scores for the SMS, with all sub-domains receiving average scores of 3.0 or higher (out of 4.0) for the SMS included. Adolescents also provided suggestions to optimize content, including improvements to unclear messages, resulting in SMS with adolescent-friendly content in simple, straightforward language. This process also revealed that adolescents lacked knowledge and had misconceptions related to contraceptive methods. CONCLUSION: This study details the systematic process used to develop relevant and accessible SRH information through a participatory approach. We document critical information about what young people know and how they think, enabling us to understand their perspective and literally speak their language. Results also provide future directions for programmatic, research and policy efforts with young people, in particular around gender norms, interpersonal violence, and access to SRH information and services, in similar settings.


Asunto(s)
Salud Reproductiva , Conducta Sexual/psicología , Salud Sexual , Envío de Mensajes de Texto , Adolescente , Adulto , Investigación Participativa Basada en la Comunidad , Femenino , Grupos Focales , Humanos , Masculino , Perú , Embarazo , Investigación Cualitativa , Reproducibilidad de los Resultados , Adulto Joven
5.
Kiru ; 9(1): 13-20, ene.-jul. 2012. ilus
Artículo en Español | LILACS, LIPECS | ID: lil-713979

RESUMEN

Objetivo. Evaluar la condición microbiológica antes y después del uso de la pieza de mano en pacientes atendidos en la clínica odontológica de la USMP. Material y métodos. Estudio de tipo descriptivo, prospectiva, longitudinal. Se utilizaron 16 piezas de mano de la clínica especializada en odontológica de la USMP, como medio de cultivo se usó el Agar sangre para observar las diferentes clases de microorganismos presentes. Resultados. Las muestras esterilizadas en autoclave, sembradas en agar sangre presentaron ausencia de microorganismos. En contraste, las muestras desinfectadas con glutaraldehido al 2%, hipoclorito de sodio al 5% y alcohol al 70 % mostraron presencia de estafilococos epidermidi, estafilococos aureus, cocos beta hemolítico en el agar sangre. Las muestras desinfectadas con glutaraldehido al 2%, hipoclorito de sodio al 5% y alcohol al 70 % mostraron una reducción en la presencia de microorganimos de alrededor de 82%, 44%y 86%, respectivamente. Conclusiones. El método óptimo para esterilizar las piezas de mano luego de su uso y sin deteriorarla es la autoclave.


Objective. To evaluate the microbiological condition before and after the use of the hand pieces in patients that were attended at the clinica odontologica of USMP. Material and methods. Descriptive, prospective, longitudinal research. 16 hand pieces of the clinica especializada en odontologia of the USMP were used. Blood agar was used as the culture medium to observe the different types of microorganisms that were present. Results. The samples that were sterilized by autoclave and seeded in blood agar showed an absence of microorganisms. In contrast, the samples disinfected with glutaraldehidel 2%, hypochlorite of sodium5% and alcohol 70 % showed the presence of Staphylococcus aureus, staphylococcus epidermidis, beta hemolyticus cocci in blood agar. The samples desinfected with glutaraldehide 2%, sodium hypochlorite 5% and alcohol 70 % showed a reduction in the presence of microorganisms about 82%, 44% and 86%, respectively, compared to before the disinfection. Conclusions. The effective method to sterilize the hand pieces after use and without damaging it is the autoclave.


Asunto(s)
Humanos , Esterilización , Instrumentos Dentales , Microbiología , Staphylococcus aureus , Staphylococcus epidermidis , Epidemiología Descriptiva , Estudios Longitudinales , Estudios Prospectivos
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